FNSN @10 | Article 2 of 6
Ten years of FNSN is not just a story about an organisation. It is the story of people who found a community when they needed one.
These are some of their stories, in their own words.
Chinyere’s Story
Lagos | Limb-Girdle Muscular Dystrophy Warrior
Chinyere Edith Ukatu lives with limb-girdle muscular dystrophy. Her youngest brother lived with the same condition, but she lost him two years ago.
“Losing him made me feel alone in the world.”
She found FNSN in 2025 after connecting with a disability advocate who introduced her to Oyindamola Aina Adeniyi.
“Connecting with people in my cluster helped me realise I am never alone. It has also given me the zeal to wake up every morning and stay positive and alive.”
For Chinyere, finding people who understand her journey has made all the difference.
Halleluyah and Oluwaseyifunmi’s Story
Lagos | Duchenne Muscular Dystrophy Warrior
Brothers Halleluyah and Oluwaseyifunmi Abiodun both live with Duchenne muscular dystrophy. Their father learned about FNSN from a friend who shared the foundation’s website with him in March 2026.
“FNSN has been more than just an organisation to us. A friend, a family, a support system, and a hope giver.”
Oluwaseyifunmi’s message is simple:
“Thank FNSN for your love towards the warriors. God bless you.”
Rasheed’s Story
Oyo State | Becker Muscular Dystrophy Warrior
Rasheed Kenny Akeusola lives with Becker muscular dystrophy. No one else in his family has the condition.
He found FNSN on Facebook around 2017 or 2018 and has remained connected to the community since then.
“It has been beneficial to me.”
Sometimes, a few words are enough to describe what a community means.
Abiola’s Story
Ogun State | Duchenne Muscular Dystrophy Warrior
Photo coming soon
Abiola Adetayo Adeniyi
Abiola Adetayo Adeniyi was there when FNSN was still finding its feet. He has watched the foundation grow from its early days into the community it is today.
“It has been a game changer. The right channel for warriors and their caretakers.”
After ten years, Abiola is still here. Still part of the journey.
Temitope’s Story
Lagos | Becker Muscular Dystrophy Warrior
Before finding FNSN, Giwa Temitope Racheal and her family did not know she had Becker muscular dystrophy. They believed something spiritual was wrong and searched for answers in different places.
Then in 2022, another warrior added her to the FNSN group.
“I would say if I hadn’t joined the group, I might have been dead. I had no idea what was wrong with me.”
For Temitope, the group gave her something she had been missing, an understanding of what she was living with and people who truly understood.
“The group has been a lot of help to me, and I am glad I am in it.”
Your Story Matters Too
Are you a warrior or family member connected to FNSN? We want to hear from you.
Reach out to FNSN and share your story.
Coming next in the FNSN @10 series: A Conversation With the Woman Who Started It All
A full written interview with Director Oyindamola Aina Adeniyi.
Publishing: September 7, 2026.
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