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  • A Conversation With the Woman Who Started It All

    Newscorner

    September 7, 2026

    A Conversation With the Woman Who Started It All

    FNSN @10 | Article 3 of 6 On the occasion…

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  • Strength Without Muscles: Redefining Masculinity Around Disability.

    Newscorner

    July 4, 2026

    Strength Without Muscles: Redefining Masculinity Around Disability.

    By: Jagun Quareeb Alabi In many African homes, a “real…

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  • Managing the “Pity” Gaze: Facing Awkward Stares and Unwanted Advice.

    Newscorner

    July 4, 2026

    Managing the “Pity” Gaze: Facing Awkward Stares and Unwanted Advice.

     By: Jagun Quareeb Alabi If you walk with a sibling…

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  • The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    Newscorner

    March 3, 2026

    The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    By Jagun Quareeb Alabi Traditional weddings like Igba Nkwu are…

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  • Living with Rare Neuromuscular Diseases, Why No One Should Face It Alone

    Newscorner

    January 20, 2026

    Living with Rare Neuromuscular Diseases, Why No One Should Face It Alone

    By: Olasehinde Oluwadamilola People living with these rare conditions often…

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  • Muscular Dystrophy: Causes, Challenges, and How We Can Help

    Newscorner

    December 5, 2025

    Muscular Dystrophy: Causes, Challenges, and How We Can Help

    Have you ever seen a child who stumbles often, or…

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Latest Posts

  • The Next Ten Years: What We Are Building for You
  • Open letter to the warriors.
  • What Nigeria Still Gets Wrong About Neuromuscular Disease.
  • A Conversation With the Woman Who Started It All
  • Five Stories. Five Different Journeys.

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FNSN

FNSN is dedicated to raising awareness about rare diseases, including muscular dystrophy and other neuromuscular disorders.

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HQ, Lagos, Nigeria.

Phone:

+234 905 667 2111

Email:

info@ffns.org.ng

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