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  • The Next Ten Years: What We Are Building for You

    Newscorner

    September 25, 2026

    The Next Ten Years: What We Are Building for You

    FNSN AT 10 | Article 6 of 6 Ten years…

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  • Open letter to the warriors.

    Newscorner

    September 17, 2026

    Open letter to the warriors.

    FNSN AT 10 | Article 5 of 6 This letter…

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  • What Nigeria Still Gets Wrong About Neuromuscular Disease.

    Newscorner

    September 10, 2026

    What Nigeria Still Gets Wrong About Neuromuscular Disease.

    FNSN @10 | Article 4 of 6 In Nigeria, when…

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  • Five Stories. Five Different Journeys.

    Newscorner

    September 6, 2026

    Five Stories. Five Different Journeys.

    FNSN @10 | Article 2 of 6 Ten years of…

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  • I THOUGHT MY SIBLINGS WERE THE ONLY ONES.

    Newscorner

    September 3, 2026

    I THOUGHT MY SIBLINGS WERE THE ONLY ONES.

    FNSN @10 | Article 1 of 6 Written by Oyindamola…

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  • Walking the Tightrope: Life as a Sibling of Someone With MD  

    Newscorner

    March 26, 2026

    Walking the Tightrope: Life as a Sibling of Someone With MD  

    By: Jagun Quareeb Alabi  Being a brother or sister to…

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  • Carrier Conversation: Talking about Genotype with your Partner

    Newscorner

    March 17, 2026

    Carrier Conversation: Talking about Genotype with your Partner

    By: Jagun Quareeb Alabi Talking about genotype and genetic testing…

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  • The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    Newscorner

    March 3, 2026

    The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    By Jagun Quareeb Alabi Traditional weddings like Igba Nkwu are…

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  • Neuromuscular Disorders, What’s The Hardest Part?

    Newscorner

    January 17, 2026

    Neuromuscular Disorders, What’s The Hardest Part?

    By: Jagun Quareeb Alabi Many Nigerians suffer silently from neuromuscular…

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  • Dreams that refuse to die

    Newscorner

    December 25, 2025

    Dreams that refuse to die

    By: Jagun Quareeb Alabi When people hear that a child…

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Latest Posts

  • The Next Ten Years: What We Are Building for You
  • Open letter to the warriors.
  • What Nigeria Still Gets Wrong About Neuromuscular Disease.
  • A Conversation With the Woman Who Started It All
  • Five Stories. Five Different Journeys.

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FNSN

FNSN is dedicated to raising awareness about rare diseases, including muscular dystrophy and other neuromuscular disorders.

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