-
-
-
The “Protector” Dilemma: When You Cannot Fix a Genetic Condition .
By: Jagun Quareeb Alabi If you love someone with…
-
Strength Without Muscles: Redefining Masculinity Around Disability.
By: Jagun Quareeb Alabi In many African homes, a “real…
-
Managing the “Pity” Gaze: Facing Awkward Stares and Unwanted Advice.
By: Jagun Quareeb Alabi If you walk with a sibling…
-
Carrier Conversation: Talking about Genotype with your Partner
By: Jagun Quareeb Alabi Talking about genotype and genetic testing…
-
Living with Rare Neuromuscular Diseases, Why No One Should Face It Alone
By: Olasehinde Oluwadamilola People living with these rare conditions often…
Latest Posts
Categories
Tags
awareness CareAndCompassion caregivers caregivers matter caring together Chase Your Dreams Community Support Disability Awareness DisabilityAwareness Duchenne awareness duchenne day duchenne warriors Family Family Love FFNS Nigeria FNSN at 10 genetic testing genotype Grief health advocacy Health Awareness Hidden Struggle HopeForNigeria Igba Nkwu inclusion and advocacy marriage Masculinity Mental Health muscular dystrophy muscular dystrophy awareness neuromuscular conditions Neuromuscular Disorders NeuromuscularDisorders Presence Matters rare diseases RareDiseases RareNeuromuscularDiseases relationships Sibling Strength Sibling Support StrongerTogether support caregivers SupportDontStigmatize traditional wedding world duchenne awareness day