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  • Carrier Conversation: Talking about Genotype with your Partner

    Newscorner

    March 17, 2026

    Carrier Conversation: Talking about Genotype with your Partner

    By: Jagun Quareeb Alabi Talking about genotype and genetic testing…

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  • The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    Newscorner

    March 3, 2026

    The Traditional Wedding Hurdle: Planning Igba Nkwu when your Sibling has MD.

    By Jagun Quareeb Alabi Traditional weddings like Igba Nkwu are…

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  • Living with Rare Neuromuscular Diseases, Why No One Should Face It Alone

    Newscorner

    January 20, 2026

    Living with Rare Neuromuscular Diseases, Why No One Should Face It Alone

    By: Olasehinde Oluwadamilola People living with these rare conditions often…

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  • Neuromuscular Disorders, What’s The Hardest Part?

    Newscorner

    January 17, 2026

    Neuromuscular Disorders, What’s The Hardest Part?

    By: Jagun Quareeb Alabi Many Nigerians suffer silently from neuromuscular…

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  • Inclusion and Advocacy, how Nigeria can become a safe place for people living with muscular dystrophy.

    Newscorner

    January 17, 2026

    Inclusion and Advocacy, how Nigeria can become a safe place for people living with muscular dystrophy.

    By: Jagun Quareeb Alabi Living with a disability in Nigeria…

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  • The Impact and Progress of the Massive Awareness on Rare Diseases (M.A.R.D) Campaign

    Newscorner

    January 10, 2026

    The Impact and Progress of the Massive Awareness on Rare Diseases (M.A.R.D) Campaign

    By: Olasehinde Oluwadamilola   For millions of people around the…

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  • Dreams that refuse to die

    Newscorner

    December 25, 2025

    Dreams that refuse to die

    By: Jagun Quareeb Alabi When people hear that a child…

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  • Shining a light on Rare Neuromuscular Diseases

    Newscorner

    December 20, 2025

    Shining a light on Rare Neuromuscular Diseases

    By: Olasehinde Oluwadamilola Awareness is essentially about creating opportunities for…

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  • Muscular Dystrophy: Causes, Challenges, and How We Can Help

    Newscorner

    December 5, 2025

    Muscular Dystrophy: Causes, Challenges, and How We Can Help

    Have you ever seen a child who stumbles often, or…

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  • Reflections on Duchenne Awareness Day 2025: The Importance of Supporting Caregivers.

    Newscorner

    October 1, 2025

    Reflections on Duchenne Awareness Day 2025: The Importance of Supporting Caregivers.

    On Sunday, September 7th, the Foundation for Neuromuscular Support Nigeria…

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  • The Next Ten Years: What We Are Building for You
  • Open letter to the warriors.
  • What Nigeria Still Gets Wrong About Neuromuscular Disease.
  • A Conversation With the Woman Who Started It All
  • Five Stories. Five Different Journeys.

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FNSN

FNSN is dedicated to raising awareness about rare diseases, including muscular dystrophy and other neuromuscular disorders.

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HQ, Lagos, Nigeria.

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+234 905 667 2111

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info@ffns.org.ng

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